MRI???

WEll we had our much anticipated Neurology visit on Thursday. The doctor seems a bit concerned about the size of Alex's head and that he has some veins in his forhead that are prominent. So he said we can not avoid the MRI any longer. It will be pedi day stay at the hospital. He will then discuss the results with me the next day by phone. I have not found out when we are going, but the appointment will be set within the next 6 weeks. I am trying not to worry. But try googling, hypotonia, macrocephaly and prominent or bulging forehead veins, and see what you find! I asked him again about the static encephalopathy diagnosis, and he said- yes that is what he has. I asked about CP and the doc told me that he does not like to use that for Alex's condition, he said Alex would have hypotonic CP, but prefers static encephalopathy as well. I guess the MRI will tell all. My little guy is doing great. he says about 100 words and is suprising me more and more each day. His favorite song is Thunderstruck by ACDC( this is not a joke) He even says Thunder every time he hears the music- and specialists are telling me he has hearing issues-- I DON"T THINK SO! he knows the words to HEY YA and Thunderstruck and can sing it! He tells me to push him in the swing and he kicks the soccer ball on command. My little fighter is defying every odd! That is why I was disappointed when the doc told me he was still quite hypotonic. I thought we fixed it, I thought all of the activity and therapy and gymnastics took care of it. I thought when I was told initially that it was life long that it did not apply to my son. I thought some how I was going to go to the neurologist and he was going to marvel at my son and say-- well Alex has beaten it, you have won!! So yes, despite my happy exterior and positive attitude, I am hurting inside. I am filled with wonder and worry for my little boy. I also know that Alex has two parents that love him more than anything, and will give up anything to assure that he gets all that he needs. I believe in my heart that the MRI will be fine, I also believe that yes, he has this condition, but he also has the heart and spirit of a warrior and will not accept any limits! I love my little trooper more than anything- You should see him dribble the ball- QUITE a sight-- " Athletics and physical activities will always be hard for your son," as told be numerous therapists--- I say -- Someone forgot to tell him that!!