Friday, February 29, 2008

It's been a while...

Wow where do I start? perhaps the best day of my life this year occured on fenruary 7th. I took Alex for his pediatric orthopedic appointment, and the doctor told me his hemiplegia is no longer detectable. He also told me that Alex can play contact sports like all other kids, and we should not put any more restrictions on him. This is amazing stuff.... During the past 2 years we have been told that our little boy, would always be weaker than his peers, will require special education, and have a dectable difference between his right and left side. He has also been diagnosed with Static encephalopathy( AKA Cerebral Palsy), hemiplegia, dysphagia, Sensory integration disorder, moderate hypotonia, I may be forgetting a thing or two. From the beginning any parents who hears their child will not be normal goes through the grieivng process. I probably spent over 1000 dollars on books alone-- The brain that changes itself is by far the best one, and I feel single handedly changed the course of my sons life. I have cried alot of tears, but mostly have channelled my abundance of ADD energy into one thing... fixing my boy. My family played a big part. My husband quit his job and playes catch with Alex everyday, he made him to wheelbarrows constantly and most importantly got him to speak and eat. I guess we did not need the extra private speech therapist- Thanks mom for forking over the dough for her though. My mom was always supportive and always reassuring, and gave up work to accompany me on visits, probably in case I heard horrible news she could drive home. Aunt sammi for being the best God mother on the planet. Uncle Tommy for always noticing the good things that Alex does, and pointing out the weakness so i am aware of it. But the two people most responsible are Dylan and Mackenzie- he wants to be just like them, and thanks to them never treating him like a baby, he is.
I want to get his story out to Parents..... Do not give up on your child. The medical field is changing constantly. Neuroscience is fascinating. had alex lived during a different time, the outcome may not be positive, he still might be sitting in the infant seat watching TV, but we live in a time when determination and hard work can make the brain change. There are walking examples everyday.. I am just happy that my boy is one of them.