Saturday, April 21, 2007

Decisions decisions???

We all struggle with decisions on a daily basis. One may wonder if one or two little decisions really matter? I found out yesterday that they can have a profound impact on the course of ones life. Yesterday we met with the neurologists from Robert wood Johnson. he specializes in neurological developmental delays. He could not believe Alex's progress!! Alex is doing things that nobody ever expected( well no professional, I always expected it- i think if you put your mind to something you can accomplish almost anything!) The only way the visit could have went any better than it did, is for the doc to tell me that they screwed up and Alex was misdiagnosed-- but he did not, and Alex will have this for the rest of his life... But he said he has learned to adapt.. He said this is huge. Little Alex will not settle to simply sit on the sidelines and watch, Alex apparently did not listen when he was told that he had a significant neurological problem that would effect his motor skills forever, he did not listen when told he would be slower and clumsy. Alex has defied the experts and all of the odds. So he is a bit more "fragile" as the doctors put it-- he will likely suffer more disclocations due to underdeveloped protective reflexes. He needs a spot going up the slide( I am sure Uncle Tommy has already figured this one out!!), he may lose his balance more frequently, but that is it! The doctor said the one on one he has been getting with his dad has paid off tremendously, he said that his father has taught him so much and it is obvious that we have been working him as much as possible. Then of course I told him about my new found interest in neuroscience and I am fascinated by the implications of the new findings regarding the brains plasticity! I have been testing the theories on Alex and it works! USE IT OR LOSE IT!! So although I left thourghly happy, I still remember the doc saying, contact sports are probably out for Alex, and I agreed. Then as I have been thinking since, try saying that to Alex when he is 6--- he will make the call, he has been writing his own destiny all along. In 4 years who knows maybe he will gain those elusive protective reflexes, why cant he learn to adapt to that? So when making deicisons remember, nothing is impossible. Placing limits on people.. just limits them. The best decision we have ever made as parents was to take Alex to therapy and stay home and work with him, it has paid off more than any amount of money lost ever could.

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